{"store":{"baseInfo":{"podcastTitle":"The Time We Have","slug":"mndnsw","podcastDescription":"Most people realise at some point in their lives that they have more past than future. That point can be the loss of a parent, a round birthday, or a life-limiting disease, such as motor neurone disease. This podcast focuses on people living with MND and the people around them. It is about how to make the most of the time we have - because time is always now.","podcastLogo":"https://pbcdn1.podbean.com/imglogo/image-logo/15892244/MND-NSW-Logo-square-new-2000px.jpg","podcastShareLogo":"https://d2bwo9zemjwxh5.cloudfront.net/image-logo/15892244/MND-NSW-Logo-square-new-2000px_1200x628.jpg?s=26402de82c5433bc597c40f6658ca30f&e=jpg","podcastUrl":"https://mndnsw.podbean.com","podcastCanSearched":true,"feedUrl":"https://feed.podbean.com/mndnsw/feed.xml","theme":"elegant","podcastDeepLink":"https://www.podbean.com/pu/pbblog-5px2j-f27f14","removePodbeanBranding":"no","brandingLogo":null,"timeZone":{"timeZoneId":75,"gmtAdjustment":"GMT+10:00","useDaylightTime":1,"value":10,"text":"(GMT+10:00) Canberra, Melbourne, Sydney","daylightStartTime":"First Sunday of October +2 Hours","daylightEndTime":"First Sunday Of April +3 Hours/First Day Of Next Year","timezone":"Australia/Sydney"},"podcastDownloads":null,"totalEpisodes":11,"showComments":true,"iOSAppDownloadLink":null,"customizeCssUrl":null,"androidAppDownloadLink":null,"showPostShare":true,"showLike":true,"author":"MND NSW","engagementStatsBaseUrl":null,"shareEmbedLink":"https://admin5.podbean.com/embed.html?id=pbblog-5px2j-f27f14-playlist","language":"en","sensitivitySessionExpireTime":3600,"podcastApps":[{"name":"Podbean App","link":"https://r4j68.app.goo.gl/?link=https%3A%2F%2Fmndnsw.podbean.com%3Faction%3DopenPodcast%26podcastId%3Dpbblog15892244%26podcastIdTag%3D5px2j&dfl=https%3A%2F%2Fmndnsw.podbean.com&utm_campaign=pb_web&utm_source=podbean_web&utm_medium=dlink&imv=670&amv=530&isi=973361050&ibi=com.podbean.app.podcast&ipbi=com.podbean.app.podcast&apn=com.podbean.app.podcast","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/podbean-app.png","title":null}],"components":{"base":[{"id":"MainStyle","val":"light"},{"id":"Font","val":"Avenir"},{"id":"SecondaryFont","val":"Avenir"},{"id":"PlayerColor","val":"#8fc31f"},{"id":"PlayerStyle","val":"player1"},{"id":"PlayerWave","val":"show"},{"id":"Favicon","val":null},{"id":"CookiesNotice","val":"hide"},{"id":"CookiesNoticeContent","val":"

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The Time We Have

Time is precious - what do we do with our time? And how does our perspective change when we receive a life-limiting diagnosis, or when we have a loved one who does?

Music by Hot Music from Pixabay

Image by Karsten Bergmann from Pixabay

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Lauren is 17 when she wins the design competition for the national MND Youth Hub. A cup of oatmeal in the morning symbolises her beautiful relationship with her dad, Carlos, who has motor neurone disease. Lauren also created the artwork for this episode which pictures the pair.

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I’m a young carer, but hey

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