{"store":{"baseInfo":{"podcastTitle":"The Time We Have","slug":"mndnsw","podcastDescription":"Most people realise at some point in their lives that they have more past than future. That point can be the loss of a parent, a round birthday, or a life-limiting disease, such as motor neurone disease. This podcast focuses on people living with MND and the people around them. It is about how to make the most of the time we have - because time is always now.","podcastLogo":"https://pbcdn1.podbean.com/imglogo/image-logo/15892244/MND-NSW-Logo-square-new-2000px.jpg","podcastShareLogo":"https://d2bwo9zemjwxh5.cloudfront.net/image-logo/15892244/MND-NSW-Logo-square-new-2000px_1200x628.jpg?s=26402de82c5433bc597c40f6658ca30f&e=jpg","podcastUrl":"https://mndnsw.podbean.com","podcastCanSearched":true,"feedUrl":"https://feed.podbean.com/mndnsw/feed.xml","theme":"elegant","podcastDeepLink":"https://www.podbean.com/pu/pbblog-5px2j-f27f14","removePodbeanBranding":"no","brandingLogo":null,"timeZone":{"timeZoneId":75,"gmtAdjustment":"GMT+10:00","useDaylightTime":1,"value":10,"text":"(GMT+10:00) Canberra, Melbourne, Sydney","daylightStartTime":"First Sunday of October +2 Hours","daylightEndTime":"First Sunday Of April +3 Hours/First Day Of Next Year","timezone":"Australia/Sydney"},"podcastDownloads":null,"totalEpisodes":11,"showComments":true,"iOSAppDownloadLink":null,"customizeCssUrl":null,"androidAppDownloadLink":null,"showPostShare":true,"showLike":true,"author":"MND NSW","engagementStatsBaseUrl":null,"shareEmbedLink":"https://admin5.podbean.com/embed.html?id=pbblog-5px2j-f27f14-playlist","language":"en","sensitivitySessionExpireTime":3600,"podcastApps":[{"name":"Podbean App","link":"https://r4j68.app.goo.gl/?link=https%3A%2F%2Fmndnsw.podbean.com%3Faction%3DopenPodcast%26podcastId%3Dpbblog15892244%26podcastIdTag%3D5px2j&dfl=https%3A%2F%2Fmndnsw.podbean.com&utm_campaign=pb_web&utm_source=podbean_web&utm_medium=dlink&imv=670&amv=530&isi=973361050&ibi=com.podbean.app.podcast&ipbi=com.podbean.app.podcast&apn=com.podbean.app.podcast","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/podbean-app.png","title":null}],"components":{"base":[{"id":"MainStyle","val":"light"},{"id":"Font","val":"Avenir"},{"id":"SecondaryFont","val":"Avenir"},{"id":"PlayerColor","val":"#8fc31f"},{"id":"PlayerStyle","val":"player1"},{"id":"PlayerWave","val":"show"},{"id":"Favicon","val":null},{"id":"CookiesNotice","val":"hide"},{"id":"CookiesNoticeContent","val":"

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The Time We Have

Time is precious - what do we do with our time? And how does our perspective change when we receive a life-limiting diagnosis, or when we have a loved one who does?

Music by Hot Music from Pixabay

Image by Karsten Bergmann from Pixabay

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Sue Fower is on a trip of a lifetime. When her group reaches Iran, she receives a letter from her mother, warning her that she will be in for a shock when she arrives in the UK. Her mum had MND, and that was in 1990.

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The way my mother was

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