{"store":{"baseInfo":{"podcastTitle":"The Time We Have","slug":"mndnsw","podcastDescription":"Most people realise at some point in their lives that they have more past than future. That point can be the loss of a parent, a round birthday, or a life-limiting disease, such as motor neurone disease. This podcast focuses on people living with MND and the people around them. It is about how to make the most of the time we have - because time is always now.","podcastLogo":"https://deow9bq0xqvbj.cloudfront.net/image-logo/15892244/MND-NSW-Logo-square-new-2000px.jpg","podcastShareLogo":"https://d2bwo9zemjwxh5.cloudfront.net/image-logo/15892244/MND-NSW-Logo-square-new-2000px_1200x628.jpg?s=26402de82c5433bc597c40f6658ca30f&e=jpg","podcastUrl":"https://mndnsw.podbean.com","podcastCanSearched":true,"feedUrl":"https://feed.podbean.com/mndnsw/feed.xml","theme":"elegant","podcastDeepLink":"https://www.podbean.com/pu/pbblog-5px2j-f27f14","removePodbeanBranding":"no","brandingLogo":null,"timeZone":{"timeZoneId":75,"gmtAdjustment":"GMT+10:00","useDaylightTime":1,"value":10,"text":"(GMT+10:00) Canberra, Melbourne, Sydney","daylightStartTime":"First Sunday of October +2 Hours","daylightEndTime":"First Sunday Of April +3 Hours/First Day Of Next Year","timezone":"Australia/Sydney"},"podcastDownloads":null,"totalEpisodes":11,"showComments":true,"iOSAppDownloadLink":null,"customizeCssUrl":null,"androidAppDownloadLink":null,"showPostShare":true,"showLike":true,"author":"MND NSW","engagementStatsBaseUrl":null,"shareEmbedLink":"https://admin5.podbean.com/embed.html?id=pbblog-5px2j-f27f14-playlist","language":"en","sensitivitySessionExpireTime":3600,"podcastApps":[{"name":"Podbean App","link":"https://r4j68.app.goo.gl/?link=https%3A%2F%2Fmndnsw.podbean.com%3Faction%3DopenPodcast%26podcastId%3Dpbblog15892244%26podcastIdTag%3D5px2j&dfl=https%3A%2F%2Fmndnsw.podbean.com&utm_campaign=pb_web&utm_source=podbean_web&utm_medium=dlink&imv=670&amv=530&isi=973361050&ibi=com.podbean.app.podcast&ipbi=com.podbean.app.podcast&apn=com.podbean.app.podcast","image":"https://pbcdn1.podbean.com/fs1/site/images/admin5/podbean-app.png","title":null}],"components":{"base":[{"id":"MainStyle","val":"light"},{"id":"Font","val":"Avenir"},{"id":"SecondaryFont","val":"Avenir"},{"id":"PlayerColor","val":"#8fc31f"},{"id":"PlayerStyle","val":"player1"},{"id":"PlayerWave","val":"show"},{"id":"Favicon","val":null},{"id":"CookiesNotice","val":"hide"},{"id":"CookiesNoticeContent","val":"

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The Time We Have

Time is precious - what do we do with our time? And how does our perspective change when we receive a life-limiting diagnosis, or when we have a loved one who does?

Music by Hot Music from Pixabay

Image by Karsten Bergmann from Pixabay

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Jo Thorne lost her husband Bunny to MND and is now supporting a carer who is on a similar journey, caring for a person living with MND. Tony Houlcroft is looking after his wife Narelle who has PLS. He is connected to a carer mentor who is available to chat and look for solutions to everyday challenges.

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Walk with me

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