The Time We Have

Most people realise at some point in their lives that they have more past than future. That point can be the loss of a parent, a round birthday, or a life-limiting disease, such as motor neurone disease. This podcast focuses on people living with MND and the people around them. It is about how to make the most of the time we have - because time is always now.

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Episodes

Flying high

Friday Sep 08, 2023

Friday Sep 08, 2023

Sarah El-Wahsh grows up in Kuwait and wants to become a pilot, but then she decides to become a speech pathologist. Find out what a speechy does and how Sarah manages to fly high! 

I’m a young carer, but hey

Sunday Aug 20, 2023

Sunday Aug 20, 2023

Lauren is 17 when she wins the design competition for the national MND Youth Hub. A cup of oatmeal in the morning symbolises her beautiful relationship with her dad, Carlos, who has motor neurone disease. Lauren also created the artwork for this episode which pictures the pair.
 

The way my mother was

Sunday Jul 30, 2023

Sunday Jul 30, 2023

Sue Fower is on a trip of a lifetime. When her group reaches Iran, she receives a letter from her mother, warning her that she will be in for a shock when she arrives in the UK. Her mum had MND, and that was in 1990.

Put a voice to my soul

Monday Jul 17, 2023

Monday Jul 17, 2023

Mike Gilbert is 78 and just moved into a palliative care unit at a local hospital. He lost his voice two years ago, but still dedicates his time to making noise about how to support people with MND.

Small change, big difference

Monday Jul 10, 2023

Monday Jul 10, 2023

Fifteen-year-old Manasi Thornley takes a nap after going for a run. She wakes up completely paralyzed and has to be moved, bathed, and fed by her family. Listen to how she became a passionate and compassionate occupational therapist who makes a difference in her patients' lives every day. 

Walk with me

Sunday Jun 18, 2023

Sunday Jun 18, 2023

Jo Thorne lost her husband Bunny to MND and is now supporting a carer who is on a similar journey, caring for a person living with MND. Tony Houlcroft is looking after his wife Narelle who has PLS. He is connected to a carer mentor who is available to chat and look for solutions to everyday challenges.

Grief and the holey heart

Monday May 29, 2023

Monday May 29, 2023

Grief and loss can be overwhelming, but there is professional help for those struggling with change and loss. What does a grief counsellor do and how does she herself deal with grief? Questions for certified bereavement practitioner Mandy Cox.

Someone burnt the toast!

Tuesday May 09, 2023

Tuesday May 09, 2023

Kerry and her husband Mark have a young family, work full time and plan a trip to Europe together for their 40th birthdays. During the second lockdown in 2021, Mark experiences strange symptoms. Nine months and seven neurologists later, he is diagnosed with MND.
Music in this episode: It Is Well, sung by Mark and Kerry Thomas.

A burning desire to discover

Monday Apr 17, 2023

Monday Apr 17, 2023

From an early age, Steve Vucic wants to become a doctor and find out how nerves work, and why they stop working. He has an inquisitive mind and wants to find the key to neurological diseases - what does it take for him to get there?

The Wrecking Ball

Tuesday Mar 28, 2023

Tuesday Mar 28, 2023

When Fran Murphy is diagnosed with MND just before Christmas 2018, she keeps working and books a few trips with her husband. Then COVID happens...

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The Time We Have

Time is precious - what do we do with our time? And how does our perspective change when we receive a life-limiting diagnosis, or when we have a loved one who does?

 

Music by Hot Music from Pixabay

Image by Karsten Bergmann from Pixabay

 

 

 

 

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